The infographic explains:
Infographic by @Remake
According to theAsianParent, there are 4 Primary Types of SMA that affect young children:
In Devdan's case, he is suffering from Type 2.
According to Mothership, the first-time parents' Shu Wen and Dave, learned that their then one-month-old son would require expensive gene therapy to be able to walk and play like other children. They were unsure of how they would be able to finance the S$2.868 million treatment (Almost 2.9M, depending on the current exchange rate of USD).
Devdan is turning two in October this year and he is a happy and easy-going child. He is imaginative, has a great attention span, and can play independently on his own.
Ray of Hope is currently working on a crowdfunding charity to handle all the payments so you can be sure that the funds are going directly for his treatment. Ray of Hope does not take a cut from the donations, and 100% of your donations will go to his treatment. Payment will be made directly to the hospital. The hospital requires one month to process the paperwork and to bring the drug over.
Infographic by @Remake
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The One-time-only gene therapy treatment for children aged under two years with SMA: Zolgensma is approved by the FDA in 2019. It is designed to target the genetic root cause of SMA by replacing the function of the missing or nonworking survival motor neuron 1 (SMN1) gene. This will, in turn, stop the progression of SMA and sustain the remaining muscle function needed for children to survive.
As parents, Shu Wen and Dave want the very best for Devdan and for him to lead a life as “normal” as possible. However, the staggering cost of Zolgensma is posing a huge challenge.
If he misses this chance, the other 2 options are daily oral medication and an intrathecal injection every 4 months for the rest of his life.
His parent hopes to be able to raise the amount by 1st September 2021 as it takes a month for the Hospital to process the paperwork and bring the drug over.
As of 8th August 2021, the amount needed has reached 39%.
As the saying goes, every droplet creates a Big ocean. It's only each one of us that comes together that can help this boy bringing back a normal life. Our little choice here will make a big difference for him.
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How to Donate to this Campaign:
You can donate via:
1. Credit Card through the donation portal on Ray of Hope website, click HERE.
2. PayLah! and PayNow, using the QR code below. The donation will take 3 working days to be reflected on the campaign’s donor list:
3. Cheques should be made out to “Ray of Hope”. Please indicate “Devdan” on the back of the cheque with your name and contact number and post to Ray of Hope at the following address: 152 Beach Road #24-01 Gateway East, Singapore 189721
♥ Thanks for reading as always!
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